LIVE NOW - NO OPPORTUNITIES WASTED!!! LIVE in the NOW!

Every day more and more children in South Africa are born with Autism.



Cullen was born 15 September 2006...



Children with Autism dont show emotion, dont make eye contact, dont play, dont interact, often have problems with Speech and fine motor control...



Cullen continues to challenge himself and conquer all of this...



The Challenge - SPEECH and FINE MOTOR CO-ORDINATION, MORE PLAY, MORE INTERACTION...







Follow our journey, our challenge, our triumph, our lives...



Sunday 10 June 2012

WEEKEND FUN...head bangs and pooh jobs

You know sometimes just sometimes...you think to yourself...
This is NOT what I signed up for when I "romanticised" about being this wonderful, gooey eyed, adoring, smitten, loving (enough adjectives...) PARENT!

We had a weekend of FUN...
I took the kids to join Dad at SIN CITY (SUN CITY) and we kicked off our trip early Saturday morn...but I should have know it was gonna be the sort of kick off you get from an angry mule who has woken up on the moon never mind the wrong side of the bed...

Horsie just did not want to get up leaving the warm snuggling bed of his nana, who by the way is a complete saint, cause she is the one who chats at 1am til 4:30AM, most mornings when this horsie decides its chats time. ANyway, so it was a struggle to get the car packed (bearing in mind - its no ordinary throw some clothes in a suitcase pack.) We pack special food, we make special food for the trip, we pack nappies, we pack clothes and packets for pooooohie nappies, we pack special dvd with portable dvd player to keep calmness and so and so on...oh and OOODLES of Horsies meds...and special nutrients/vitamins etc.

Anyway getting side tracked - back to the packing, packing alone with an inquisitive overly excited freakish happy 3 year old ladybug, in 0 degree weather with a VERY let me repeat VERY reluctant Horsie...

WELL IS NOT my idea of FUN!!!

And the ride there (the entire 2 hours only because I was racing to get to HELP -Hubby help) was TRAUMATIC!!! Ultra traumatic! I stopped twice for re-adjustments to the seatbelt, pillow, blankie, food wise, and then once for Ladybug to wee wee on the side of the road where the veld grass is at least 2m tall...only for her to have "stage fright" with no pee pees, so I used a nappy from Horsie in case of accidents in the last 10 minutes of our journey! PHEW!!!! Just typing that makes me feel on edge... But the entire journey was met with HEAD BANGING and not of the Marilyn Manson, AC/DC, LIVE type (cause actually that would be kinda cool) but of the "Autist" type - the type where my boy is either in pain, or he is frustrated or both!!!

It is completely UNNERVING, that by the time I did get to SIN CITY I downed a double cane and mango juice! Nerves frazzled...and in tears...
*Not advocating alcohol as a form of coping mechanism - but holy hell that one was a tough one*

That begs the question- do we ever know just how tough raising our beautiful cherubs will be, because if we did, I think the population rate would actually decline...

Why would Horsie be this deathly unhappy?

well it arrived today SUNDAY (1 whole day later) the MOST HUMUNGUS YELLOWY TOXIC POOH>>>this poor Horsie was in severe GI pain (Gastro-intestinal) and he couldn't tell us and we couldn't do anything for him. He battles with this the MOST and its heart breaking - the whole derobe, shower and re-do...is getting old...not only for us but for this poor sweet Horsie who has absolutely NO CONTROL of his bowels...

Some days I AM FURIOUS at this....
Other days I just cant believe our almost 6 year old still suffers so badly with this...and is still in nappies

And before you think well what have you done, what haven't we done for his bowel...and what we continue to do is PRAY...

Not so weekend FUN...
And yet a small kiss and thanks from my Horsie tonight...makes it somewhat bearable.

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