LIVE NOW - NO OPPORTUNITIES WASTED!!! LIVE in the NOW!

Every day more and more children in South Africa are born with Autism.



Cullen was born 15 September 2006...



Children with Autism dont show emotion, dont make eye contact, dont play, dont interact, often have problems with Speech and fine motor control...



Cullen continues to challenge himself and conquer all of this...



The Challenge - SPEECH and FINE MOTOR CO-ORDINATION, MORE PLAY, MORE INTERACTION...







Follow our journey, our challenge, our triumph, our lives...



Wednesday, 27 July 2011

TOOTHE Tales

Our Horsie proudly displays a gummy smile...ok albeit only one tooth missing...its still a milky out..
oh where oh where is it...exactly...
We dont know...
Monday morning he left a little boy with all his teeth in tact and Monday night he came home without his first ever baby tooth, that popped up at like 4 months or something ridiculous like that,,,that all seems an entire different life ago...when the ordinary milestones of teeth, sitting, standing, crawling, walking, TALKING were how we measured life, how we measured our horsie...how far we have come...

So in a normal setting...
This would be the start of TOOTH FAIRY TALES...
The start of replacing yuky milk teeth with money...
of make believing in the amazing little mouse or fairy or whatever with a penchant for collecting teeth and all things toothy...

But for us and Horsie...it is total different game we play...
Horsie doesnt even realise he doesnt have a tooth..or rather that a tooth is missing...
There are no tooth fairy stories and money issues...
What IS a PROBLEM is not knowing what happened to it...did he pull it out himself? How long was it loose? Where exactly did he throw it...
Enter nightmares of a different kind...ATTACK OF THE KILLER RETURNING MILK TOOTH...
Did he swallow it? Start the JAWS music...dooooo.. dup ...doooooo... dup..dooooo dup

And with all the focus on therapies and the like...
We completely forgot about milk teethies falling out...

So instead of money weve decided a FRUIT Stick under his pillow will do...
That is more important and precious than gold for Horsie...
So the fruit stick fairy has dropped on by...yaaaaaaaaaay...
Love you Horsie

Friday, 22 July 2011

MY WAY

He did it his way...
My grandfather passed away today...

On one hand it is really so so SAD to lose such a legend of a grandfather, father, great grandfather...but almost relieved that he is at peace and happy that he is with my gran...who has been together for the past 57 years!!

Life NEVER prepares you for DEATH...

Life only gives you an opportunity to experience it - to savour it - to take it in- before you begin to experience death...

ROY RACE you did it your WAY...
What a legacy you leave...beautiful children, gorgeous grand children (me being one of them lol)...
and even more special GREAT grand children...
You and gran always looked at the best in each and every individual...

You played the horses, you ate ice cream, and drank hundreds litres of coke in your life time...
You worked hard and loved your sports...
In the last few years you really cherished every weekend with the great grandkids...

Jada was your cheeky chops...you welled up with tears every time you saw her, and even more so in these last few days when we spoke about her...
Cully poops was always foremost in your mind...
Aidan and Connor also each in their own right a favourite of yours...
You and gran lived for the kids...yours, your kids'kids, your great grandkids...

I hold onto to those smiling eyes, that whistle, and excited stutter...

Nothing prepares you for this painful loss..no exepectation of what is to come..NOTHING...

But you leave our hearts and minds filled with only good, rich, textured, beautiful memories and stories...

And you did it your way...
LOVE you forever and always...

OH BUT Dont get too comfortable, Gran is waiting to chew you out for all the steak and chips, coke and ice-cream you been having...and Chris well he cant wait for your next chip fry up...its been far too long.

Wednesday, 13 July 2011

IN AN INSTANT - A REMINDER - WE ARE NOT IN CONTROL

Well well...
No-one really knows this...
The starting point of this blog...
How it began...

It began just after I lost my granny in FEBRUARY this year...
THE MOST GRACIOUS YET STRONGEST (both in soul and mind - nevermind physical) WOMAN I know besides my mommy...
Loosing Gran so suddenly to a stroke...really made me realise YET AGAIN that WE are so NOT in control - yes we can control our daily decisions but ultimately we do not know when...we will go...and whether will be ready to go...

So a blog has offered me an opportunity to share my gorgeous children and our challenging fun filled time together.

Yesterday...a 7am phone call resulted in my "pa" grandfather being eventually admitted to ICU - a heart attack...and for me yet another instaneous reminder of JUST HOW MUCH WE NO HAVE NO CONTROL OVER many many many things...like...a heart attack.

Yes we can eat well, we can go for check ups, exercise, live well with intention and be good souls (ALL THE MAGAZINES and HEALTH PROGRAMMES PREACH IT TO US), but when your heart is broken after losing your partner of 57 years...well then your HEART is literally broken...and that WE DEFINITELY CANT CONTROL!!!

So in the midst of a HUGE WORK WEEK of BUDGETS ETC ETC ETC...a reminder...again...

LIFE IS PRECIOUS...

TREAT IT WITH RESPEC ,WITH LOVE, WITH THE UTMOST APPRECIATION!!!

So I begin by saying how much I appreciate my horsie and my ladybug...
What a different life I am living...
How lucky to be apart of their beautiful lives and share in their souls...

My little horsie satrting HORSIE LESSONS on Monday...and this is WONDERFUL...its call HIPPO therapy although nothing to do with big stomping HIPPOS...and everything to do with stability, the motion of a Horse and the therapeutic effects of riding...

The riding instructor (who I have yet to meet face-to-face) says she had a child who did not utter one word begin to speak with just a few lessons and talk to his CARROTS! (His Horse)

Now dont laugh... but my little Horsie's horse is called DILLY...ironic dont you think...

What is NOT Dilly is how much Cully loved this hour...he smiled from ear to ear...
This is a reminder of the small things...the things we are NOT IN CONTROL OF...but which we should value and be thankful for...

To end this post:
A BIG THANK YOU AS ALWAYS TO MY MOMMY WHO TEACHES ME EVERYDAY IN EVERYWAY HER SELFLESS STRENGTH...something I know she learnt from granny Ann...love you both like crazy and Pa NO giving the NURSES tooo much trouble in ICU...GET BETTER QUICKLY your ladybug and horsie missing you.

*HUGS and KISSES and love to all my friends and family always every day in every way*
Cliched...but hey...lifes' too short right now to come up with anything better at this moment...

Sunday, 10 July 2011

Progressive MOMENTs

OUR HORSIE...can sip from a glass, hold it without just throwing it down....
Are we crazy for even blogging about something as simple as this...?

NO...

This was a big HURDLE and will always be something of a challenge...Horsie...has been able to sip from a cup for some time now...but holding on it and gently placing it down when he needs to...that has been the HUGE EVEREST!!!

But for tonight...and it may ONLY be for tonight ...
He held my glass of TAB (Not something is able to drink often - strict diet and all)
He sipped...sipped...sipped...
Became almost obsessed with the bubbles and texture...
BUT the biggest thing...
He did not... JUST throw it down...he held on to it...

AND WE SMILED...
WE MADE EYE CONTACT - LOTS....
WE EXCHANGED KISSES (some with tongue)... *wink*
AND WE BASKED IN THIS MOMENT...

OUR BOY IS PROGRESSING...

He may be the tortoise and NOT the Hare...
BUT WE WILL GET THERE...
SLOW and Steady...
PROGRESSSIVE MOMENTS

Tuesday, 5 July 2011

CREATIVITY - the key to dressing a 2 and a half year old

Ok so this blog has been neglecting the other increasingly interesting aspect of our lives....the challenging 2 and halfs...
Ladybug...whoaaa...she is giving us a serious run for our patience...
CREATIVITY CREATIVITY CREATIVITY without losing our sense of humour...thats is the challenging part...

JUST to get our ladybug dressed in this freaky stone age weather...at night after a warm bath (which you would think would be easy right?) is a aaaaah ok 1....2.....3.....woooosaaaaa....dont lose it moment...

Hubby decided to hell with the "HOLD HER DOWN AND DRESS HER APPROACH WHILST SHE KICKS AND SCREAMS HER HEAD OFF GOING RED HOT IN THE FACE WITH REAL TEARS RUNNING DOWN HER ANGRY FACE" ....yes people these are the AWESOME TWOS....we never got to deal with this stage with our Horsie (WOW one thankful thing I missed out on actually)

He decided "bootcamp" with exciting thrilling lets jump up and down, stretch your legs, stretch to the ceiling, sit down almost a SIMON Says game was the way to go...and well yes...it was...simple YET HIGH EFFECTIVE!

WOW Sheer BRILLIANCE...

She was HOOKED...copying daddy as he sat down, jumped up, stretched his arms,legs almost injuring himself....(and not in the way he likes) with all the thrilling exciting smiling "this is THE BEST GAME EVER" enthusiasm you have ever seen...long enough for me mamma bear - what you ma-call-it-do everything-quick -without-too-much interference person, dressed her pice by piece, first her vest, then PJ top, then a nappy (ladybug still wears one at night), then long-johns, then soft PJ pants, socks and even a quick brush of the hair (NORMALLY AN IMPOSSIBILITY)

This game ROCKED...and you know what else rocked...my stomach muscles...from all the laughing...
We managed to get our ladybug dressed, ha ha we fooled you while we all laughed and played...CREATIVITY...the best start to trying to deal with your two-something-year-old and their independence and boundary jumping nevermind pushing...

Interesting times...

Where was Horsie in all of this...watching...smiling...not fazed...
Storing this data for when he will use it...one day...

ONE DAY SOON...progress for us all
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