LIVE NOW - NO OPPORTUNITIES WASTED!!! LIVE in the NOW!

Every day more and more children in South Africa are born with Autism.



Cullen was born 15 September 2006...



Children with Autism dont show emotion, dont make eye contact, dont play, dont interact, often have problems with Speech and fine motor control...



Cullen continues to challenge himself and conquer all of this...



The Challenge - SPEECH and FINE MOTOR CO-ORDINATION, MORE PLAY, MORE INTERACTION...







Follow our journey, our challenge, our triumph, our lives...



Tuesday, 12 June 2012

GOOOOLF DAY for my Horsie 3 July 2012

ok so every time I try my hand at the fine game of GOLF (Gentlemen only Ladies forbidden)...
I fall preggers...
My beautiful clubs, with spiked pink and white golf shoes, along with my "Callaway" pink hat, and outfit are tucked snuggly away for now...

BUT...

I am embarking on the 2nd Annual Action for Autism Golf day all in aid of raising some serious moola for my Horsie and his extra special care.

Date: 3 July 2012
Roodepoort Country Club
First tee off at 11am

For more info contact me via email or leave a message here or on facebook.



What a fun day its going to be...so roll up your sleeves, ignore the mundane of your Tuesday and join us!!!

Sunday, 10 June 2012

WEEKEND FUN...head bangs and pooh jobs

You know sometimes just sometimes...you think to yourself...
This is NOT what I signed up for when I "romanticised" about being this wonderful, gooey eyed, adoring, smitten, loving (enough adjectives...) PARENT!

We had a weekend of FUN...
I took the kids to join Dad at SIN CITY (SUN CITY) and we kicked off our trip early Saturday morn...but I should have know it was gonna be the sort of kick off you get from an angry mule who has woken up on the moon never mind the wrong side of the bed...

Horsie just did not want to get up leaving the warm snuggling bed of his nana, who by the way is a complete saint, cause she is the one who chats at 1am til 4:30AM, most mornings when this horsie decides its chats time. ANyway, so it was a struggle to get the car packed (bearing in mind - its no ordinary throw some clothes in a suitcase pack.) We pack special food, we make special food for the trip, we pack nappies, we pack clothes and packets for pooooohie nappies, we pack special dvd with portable dvd player to keep calmness and so and so on...oh and OOODLES of Horsies meds...and special nutrients/vitamins etc.

Anyway getting side tracked - back to the packing, packing alone with an inquisitive overly excited freakish happy 3 year old ladybug, in 0 degree weather with a VERY let me repeat VERY reluctant Horsie...

WELL IS NOT my idea of FUN!!!

And the ride there (the entire 2 hours only because I was racing to get to HELP -Hubby help) was TRAUMATIC!!! Ultra traumatic! I stopped twice for re-adjustments to the seatbelt, pillow, blankie, food wise, and then once for Ladybug to wee wee on the side of the road where the veld grass is at least 2m tall...only for her to have "stage fright" with no pee pees, so I used a nappy from Horsie in case of accidents in the last 10 minutes of our journey! PHEW!!!! Just typing that makes me feel on edge... But the entire journey was met with HEAD BANGING and not of the Marilyn Manson, AC/DC, LIVE type (cause actually that would be kinda cool) but of the "Autist" type - the type where my boy is either in pain, or he is frustrated or both!!!

It is completely UNNERVING, that by the time I did get to SIN CITY I downed a double cane and mango juice! Nerves frazzled...and in tears...
*Not advocating alcohol as a form of coping mechanism - but holy hell that one was a tough one*

That begs the question- do we ever know just how tough raising our beautiful cherubs will be, because if we did, I think the population rate would actually decline...

Why would Horsie be this deathly unhappy?

well it arrived today SUNDAY (1 whole day later) the MOST HUMUNGUS YELLOWY TOXIC POOH>>>this poor Horsie was in severe GI pain (Gastro-intestinal) and he couldn't tell us and we couldn't do anything for him. He battles with this the MOST and its heart breaking - the whole derobe, shower and re-do...is getting old...not only for us but for this poor sweet Horsie who has absolutely NO CONTROL of his bowels...

Some days I AM FURIOUS at this....
Other days I just cant believe our almost 6 year old still suffers so badly with this...and is still in nappies

And before you think well what have you done, what haven't we done for his bowel...and what we continue to do is PRAY...

Not so weekend FUN...
And yet a small kiss and thanks from my Horsie tonight...makes it somewhat bearable.

Friday, 8 June 2012

Distant dreaming...face farts, heart breaking screams and toileting woes... (wow what a title)

Its been far too long to even digest the fact that I haven't been able to passionately write about my Horsie and ladybug...
I have been somewhat of a mamma bear hibernating...actually honestly...I have been trying to survive the last 2 and half months...
I did it again...I changed companies...and keep saying to myself don't do it to yourself...but cest la vie...if this chick not happy...we not happy and there is far tooo much going on behind the scenes (HOME) for me to be a troubled worker bee.

So after 2 and half months on training (INTENSIVE HECTIC ENERGY SAPPING EDUCATING TRAINING) I am back...woooohoooooo!!!
So no more distant dreaming of blogging....

NOW onto the good stuff...finished with excuses blah blegh blaaaa...

Horsie is astonishing he just makes like soooo very interesting, I mean face farts...in daddy's face, at a time where mommy can just stand back and laugh so HARD it hurts (THE KINDA REVENGE YOU THINK IS SUPER SWEET WHEN THE HUBBY IRKS YOU...you know...when he plays golf and comes home a bit ailed, or forgets to buy your favourite chocolate(actually he cant even remember your favourite choccie!) or when you just feel that in that moment HELL that was PISS funny!) Daddy was changing our boy...which granted is NOT an easy feat I mean 36kg of pure MUSCLE!!!! wearing nappies, and all of a sudden BAM!!! A BIG TOXIC PUKY ONE Right in the kisser...(as the oldies would say!) irresistibly uncontrollably F U N N Y!!!!

And then...the down sound our date with LANCET (who by the way do HOUSE CALLS? I mean I for one really do like the the ode, "if you Don't ask you don't GET" but I really took a stab at asking the Lancet call centre if they do house visits and guess what peoples they do!!!) So on Tuesday we did it, Horsie needed some bloods taken (which is super HEART breaking more for mommy and nana than for the brave armoured Horsie) but we took extra precautions and got sedation stuffies to help, and a male nurse arrived in his little blue Ford to prick my boy and take his blood, it all happened so fast and at least my Horsie was at home in his familiar environment tantamount to an child with autism is routine and comfort (feeling safe in their own space!)

But we are BRAVE, we are DONE (well for at least another 6 months or so...)WE are O.K!

Ok and so to end off this (WELCOME BACK TO AWESOMENESS...there is no charge for awesomeness -Kung Fu Panda! lol) blog entry...

TOILETING>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
The bain of my existence for the last 2 years....
I JUST WANT to wake up from this ongoing NIGHTMARE!!!
We still haven't got our Horsie to REALLY do much...
OK OK UNDERSTATEMENT he is making number 1's (wee wees) but boy oh boy do you have to be vigilant...its an every 10-15 minute affair...he does not take himself...
AND LETS NOT EVEN THINK about the number 2's...

We all are trying to WORK very hard, Wiggles, us at home, Cully...all of us...

PRAYING FOR A MIRACLE...A BREAK THROUGH...

WANT HIM TOILET TRAINED BY his 6th birthday...that is.....
4 months and counting...tickity tock...
flippity flip....




P>S Oh boy was this FUN...pictures and all...
*Giving self serious NODDY BAdge*




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