LIVE NOW - NO OPPORTUNITIES WASTED!!! LIVE in the NOW!

Every day more and more children in South Africa are born with Autism.



Cullen was born 15 September 2006...



Children with Autism dont show emotion, dont make eye contact, dont play, dont interact, often have problems with Speech and fine motor control...



Cullen continues to challenge himself and conquer all of this...



The Challenge - SPEECH and FINE MOTOR CO-ORDINATION, MORE PLAY, MORE INTERACTION...







Follow our journey, our challenge, our triumph, our lives...



Sunday 5 June 2011

TRIPLE VODKA PLEASE!!!

Ok so with MANY MANY DEEEEEEP breathes.. we have survived two nights of jabs to our horsie!

We finally got the methyl B 12 (special methylated vitamin B 12 that crosses the blood brain barrier - and has shown significant success in terms of language acquisition amongst other things) In Jenny McCarthy's book "Louder than Words" her son started these B 12 injections and within 4 days he regained all his speech....AMAZING!!! So here is holding thumbs...

It appears that when we improve glutathione production which is made by methylated B 12 , many children can make significant improvements with focus, concentration, and language. We have had the nasal spray a red aweful thing...that makes Horsie look like his nose is bleeding every morning - but the thought is, that the injections are just that MUCH MORE POTENT!!! Well ofcourse they are...but jeez can they not just develop  a PATCH??????

Anyway all of this - does not ofcourse come without a HUGE amount of anxiety on our part! I so take my hat off to parents of children with diabetes and the children themselves who have to bravely inject themselves daily! I now know what you must feel...

We tried our first jab on Thursday evening - I decided we needed a calculated area to focus on, so I took a marker and put a dot on our Horsie's thigh - almost like a dartboard BULLS EYE - FREAKS we are - but there is method in our madeness (ok my madness)...

I then rubbed EMLA (Schedule 1 cream) that makes the area you rub it on dead. We decided to get it over and done with ASAP...in fact I have NOT seen my hubby so full of angst in since well..

NEVER!!

Nothing prepares you for the thought of VOLUNTARILY injecting your 4 and half year old boy!

Hubby decided that he WAS TARGET PRACTICE!!! So he injected himself - but in the 'quickness" of trying to deliver this 1mm needle 2mm into the skin just under the skin subcutaneously - he jabbed a bit hard into his muscle...LEARNING CURVE...NOT TOO HARD....NOT TOO HARD!

He said it burned and then formed a little lump - which Dr Louise said was likely if you went toooo deep! So for Horsie...no target practice just a quick in- pump syringe all 7ml of it (also RED) and pull out quick...sounds easy enough...ha ha ha who are we kidding...

So at the next nappy change we did it!!!! Horsie did make a face but daddy was sooo quick he didnt even realise - perfect execution - NOT TOO DEEP NOT TOO HARD....and in and out. I was in AWE...hubby did it...I was panting...breathing...soothing (myself)

Tonight was the second jab - we have to do this every second day for 3 months!

Obviously - our boy is highly highly UNDERESTIMATED in terms of his understanding!

He knew what was coming at the next nappy change, slapped hubby's hand almost driving the syringe further into his left thigh...OUCH!!! Hubby quickly pulled back and jabbed again.

Its over for tonight...now only to get through another 2 months and 3 weeks and 2 days....

Phew no easy feat. BUT like a friend said - dont think of the pain think of ALL the GAIN!!!

CHeers to that - ok maybe not a TRIPLE Vodka but a bit of champers will do - these needles might JUST be the BREAK THROUGH we need and crave so much...

1 comment:

  1. Oh my gosh! I have no idea how you do it, Mons... I don't think I could give the Lionheart an injection - I'm such a big baby :) You guys are BRAVE!

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